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Re: Broken wrist

Posted: Sun Sep 10, 2017 7:28 am
by 1over137
Glad to see pain is going down. :)

Re: Broken wrist

Posted: Sun Nov 12, 2017 7:20 am
by melanie
After months of non healing, about 3 weeks ago I got the news that my wrist bones were mostly healed but it was bitter sweet as my hand and wrist was unusable and disfigured and I was diagnosed with Reflex Sympthatic Dystrophy otherwise known as Complex Regional Pain Syndrome.
A rare and painful condition of the sympathetic nervous system.
After an injury the response of the nervous system is altered and misfires signals to the brain so pain, inflammation and other symptomatic responses are altered.
There is no cure and it often spreads to other parts of the body. My upper arm and shoulder of the same arm (right) has also been affected.
It is the most painful medical condition known, above childbirth and amputation, as it’s not a response to the injury as such but a constant misfiring of pain signals to the brain.
My wrist has muscle atrophy so I’m unable to move or rotate it but my specialist told me a couple of weeks ago to get rid of the splint, grit through the pain and bloody move it. His words. Move it or lose it.
So that’s what I’ve done, I have a great physio and I’m signed into a study that starts in just over a week. I’ve already had small but significant improvements.
I’m tackling it usual Mel style, like a dog with a bone. Stubborn, strong and determined.
It’s been hard and painful but I’m glad to know finally what’s wrong as I’ve known the whole time something wasn’t right. I didn’t suspect this as I’d never heard of it. My GP had never before me ever seen a case.
I’m on nerve blockers and strong opioids, I wasn’t happy with taking the drugs but my specialist said that this is a critical time and he was happy to prescribe whatever necessary to get me moving my wrist/hand. If left unused because of the atrophy it will become a permanent disability. So I’ve got a cabinet full of strong codeine medicine, not really ideal but I don’t have a choice.
I’m staying positive despite some pretty grim stories and possible outcomes. My physio is shocked at my progress. 3 weeks ago I could not move my wrist and before that my fingers were clawed. Before the diagnosis I stretched my fingers out every day literally constantly and I can now straighten them, they’re not pretty but they’re moving and now I can rotate my wrist slightly and I can move it to a small degree. I can now this last week pick up a glass and grip a knife.
It’s been emotionally and spiritually draining and physically very painful but I feel okay. Im going to do this, I really think I’m going to be one of the people that goes into remission long term. I feel it in my bones, no pun intended :ewink:

Re: Broken wrist

Posted: Sun Nov 12, 2017 7:39 am
by RickD
Mel,

I'm happy to see you've gotten a grip on your situation.

Re: Broken wrist

Posted: Sun Nov 12, 2017 7:39 pm
by Philip
Proud of your determination, Mel - just keep on praying and pushing on through the pain. I'll pray as well. Crazy the stuff life throws at us so unexpectedly.

Oh, and how is your son doing?

Re: Broken wrist

Posted: Sun Nov 12, 2017 11:07 pm
by 1over137
Mel, do you also supplement with B vitamins? It is crucial for nerve repair.
See e.g. here https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4904479/

You go girl!
My admiration.

Re: Broken wrist

Posted: Sun Nov 12, 2017 11:37 pm
by Blessed
Have you taken matters into your own hands with this diagnosis or are you just relaying on doctors. Doctors are vultures. They just want your insurance money.

I want to tell you about a dream I had once...

I was in an early 18th century gloomy gothic crowded street setting. There were hundreds of people in the streets. I was running from something but I did not know what. Then I saw it. A large German Shepard. It was running at me hard and it jumped and lunged at me snarling barking angrily. I put my hand up to block it and it clamped down hard on my upper hand thumb finger area. It would not let go. I kept talking to it and asking it to please let me go. It would not, and then I started asking for help from all the people in the steet. But they just kept walking by, and would not do anything.

The entire dream was like this. All night long. The German Shepard clamped down on my hand and would not let go.


When I woke up there were red bite marks on my hand. I took a photo with my cell phone.

The dream was so real, that my mind caused the bite marks.

The mind is an extremly complex thing.

Re: Broken wrist

Posted: Mon Nov 13, 2017 10:25 am
by B. W.
melanie wrote:...
My wrist has muscle atrophy so I’m unable to move or rotate it but my specialist told me a couple of weeks ago to get rid of the splint, grit through the pain and bloody move it. His words. Move it or lose it.
So that’s what I’ve done, I have a great physio and I’m signed into a study that starts in just over a week. I’ve already had small but significant improvements.

I’m tackling it usual Mel style, like a dog with a bone. Stubborn, strong and determined.

It’s been hard and painful but I’m glad to know finally what’s wrong as I’ve known the whole time something wasn’t right. I didn’t suspect this as I’d never heard of it. My GP had never before me ever seen a case....


Mel to the other Mel...

I fractured my back, 1997, by slipping on the stairs. Pain yes...big time.

The sciatic nerve caused issues with my left foot, lost feeling etc and walked like the Hunch Back of Notre Dame. Phyiscal therapist told me almost the same but in american terms - Pick up your d--n left foot or lose it -

I did, wasn't easy. by 1999'ish I was pain free and walked without any limp and now still hike again in the Mountains.

It was strange back then to see my left leg sort of shrink - actually bent at knee with my left foot dangle unless I moved it to the left further as it could go and shuffle along. I thought if only I could find a job in a mad scientist lab would I ever be able to work again.

So keep at it. move your hand and squeeze therapy and all that don't stop...

'Thank Jesus for healing me' as you grimace thru the pain of working it out. I used to hate my PT and his work outs but I do not now.

I will keep praying for you and put you on a prayer list too...

Blessings
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